Visit us and pass it on!
What's New on

 Check out new Pics in the Gallery

Check out these upcoming events!

Welcome to! This site was created to raise awareness and support for Fallyn R. McNamara.  Fallyn was born with a rare and painful genetic disorder known as recessive dystrophic epidermolysis bullosa (RDEB). She, and children like her, are know as "butterfly children" because their skin (both inside and out) is as fragile as the wings of a butterfly. 

See Fallyn's story:


Fallyn is a participant in clinical trials at the University of Minnesota Children's Hospital, Fairview where researchers continue to work on a potential cure for this previously incurable disease.  Fallyn started the treatment process in June 2009 and is doing well! Fallyn and her family still need YOUR help raising funds to cover the costs of follow-up care that other sources will not. Without your generosity, this journey of hope for Fallyn and her family would not be possible.  Here you can learn about Fallyn, follow her progress, find out the facts on RDEB, Donate to this special cause, volunteer your time and more.  Thank you for your interest, time & support!!



In the News: Hempfield Girl Growing Stronger

Hempfield girl growing stronger since stem cell transplant; Pittsburgh Tribune Review; Mary Pickels; Friday, January 2010

Click to read more ...


Jim Wexell supports Fallyn with "Steeler Nation"

Our special thanks go out to Jim Wexell for donating half the proceeds of sales (through Fathers' Day 2009) of his book Steeler Nation through to the Trust! Thank you for your ongoing support.