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Wednesday
Apr082009

Girl Scouts- Take Action!

Do you know any Girl Scouts looking for a project? Are you interested in having your Girl Scout Troop help raise awareness regarding EB? Check out this information on Fallyn, RDEB & ways to get involved on the website of the Girl Scouts of Western PA.

Take Action! Help the Butterfly Children...

"One of the ways that sister Girl Scouts can help Fallyn and other children like her is to get signatures of support for the Wound Care Bill in Congress. (http://www.ebanusa.org/petition.htm) Distributing information for sample letters and online signatures is needed to mandate insurance companies to provide coverage on all bandage and wound-related products needed by those who suffer from Epidermolysis Bullosa like Fallyn.

While troops cannot fund raise for other organizations, Girl Scouts can assist at events that benefit causes in their community by stuffing packets, working at registration tables, conducting flag ceremonies, serving refreshments, creating signs or acting as greeters."

Please feel free to Contact Us regarding upcoming events that your Girl Scout Troop can participate in. If your troop plans to start a campaign to get signatures for the Wound Care Bill, please let us know! With your participation in an event related to the Help Fallyn campaign, you can get a Girl Scout Fun Patch!