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Leave a message for Fallyn & her family

Dear Fallyn,

My prayers are for you. God bless.


October 20, 2014 | Unregistered CommenterHannah

Hello Fallyn!!! It's FALLYN! I don't know if you remember me or not but I was one of the Miss Teen USA girls to come and visit you while you were in minnesota! I was just wanting to check in with you to see how you are doing! I saw a butterfly the other day and it reminded me of you! It was raining that day and his wings had gotten wet in the rain and he was missing one leg so i picked him up (very carefully) and brought him home and he is now living in my house with me in a butterfly atrium. My email is You can email me and I can send you pictures of him! He is dark Purple with yellow dots! I hope to hear from you soon and I wish you the best!! Keep smiling!!!
Peace and Love
Fallyn Patterson

November 16, 2011 | Unregistered CommenterFallyn Patterson

You have touched my heart and I love and miss you. I see you are growing up fast, and your family looks well. Keep up the good work Fallyn! Have your parents let me know if there is anything I can do.......

July 24, 2011 | Unregistered CommenterCarrie

hi i am 11 i have RDEB to pleses be my friend i whant someone to talk to that know what pain i am going thro

July 17, 2011 | Unregistered Commentermatthew

I had the pleasure of meeting Fallyn at this years 4th of July celebration. Such a beautiful, happy young girl! I was glad to receive information and this website to learn more about her condition and how i can help! Keep your spirits high and that precious smile on your face Fallyn! God bless!!

July 5, 2011 | Unregistered CommenterStephanie Depp

Because they do not cause injury like 'regular' shoes. Lately she has been wearing 'Crocks" with fair success. They help protect the soles of her feet more than the slippers. They do however chafe her lower leg/ankle area where the leading edge rubs it. I have started the process of having some custom foot ware made for her. I will post pictures of them when she gets them.

Fallyn's Dad,

Frank P. McNamara

March 12, 2011 | Unregistered CommenterFrank P. McNamara

Why Fallyn is wearing slippers in the photos?

February 5, 2011 | Unregistered CommenterAlessandro

Dear Fallyn,

I found this website by typing in my name on, and i was looking at your story and it warms my heart to find that such a young girl can be so strong. I am 11 years old and you will always be in my prayers. tomorrow is my birthday and i will use some of my money from my birthday to help Fallyn. I know I live far away, in Louisiana, but I will still help. She sounds like such a wonderful girl. I will be keeping in touch with how Fallyn is doing.

lots of love,
Fallyn Rae Englehart

July 28, 2010 | Unregistered CommenterFallyn Rae Englehart

fallyn i wrote a msg for u on pg 4 when i was 9 yrs old i am 11 now and i hope u and jen are doing great!!! and by the way m name is brinna castle i wont see u next year because im going to the middle school but im glad u are coming back we missed u!!!

still lots of care and love
brinna castle ( -;

July 9, 2010 | Unregistered Commenterbrinna

I met you Sunday at the Donegal Highlands Golf Outing for my cousin Caleb Stairs this year. I just wanted to tell you, that you are an amazing little girl. You're beautiful and you'll beat this. I've never seen such a strong little girl. I hope the best for you and your family and will be checking the site often for good news. Good luck, pretty girl!

Keep on trucking through!


June 28, 2010 | Unregistered CommenterJessica Crosby

Hey fallyn west hempfield misses you and we hope to see you very soon!!!!

February 23, 2010 | Unregistered CommenterBrinna castle

Dear Fallyn and Family,

My name is Jean and I’m a volunteer with the National Bone Marrow Transplant Link. Our organization helps patients, caregivers, and families cope with the social and emotional challenges of transplant from diagnosis through survivorship by providing vital information and personalized support services. We subscribe to Google blog alerts, where we found your story.
Please know that others are thinking of you and pulling for you! To learn more about our programs and services, please visit or call 800-546-5268.
All the best!

January 7, 2010 | Unregistered CommenterJean Jones

Hi Fallyn and Family,

So glad to hear that you are doing so well. I to have EB. I am 43 years old and was in UCLA medical center for 4 months after I was born because they didnt know what I had and didnt give me past the age of 5 to live. With alot of prayers and my parents taking care of me so well I am here today.
I send many prayers and good thoughts your way.
I live near Pittsburgh if you ever want to talk or get together.
God Bless Lisa Williams

January 2, 2010 | Unregistered CommenterLisa Williams

Fallyn I MISS YOU!!!! I was so sad the day you left....I hope you are feeling good and your skin is improving with each day. I am looking forward to the day when you tell us that you are not blistering anymore. You need to tell your dad that when we get home to Florida that you want to come and visit us!!! I miss my movie buddy....You are so sweet and I just wanted to tell you that the RMH is NOT the same with out you!!! HUGS, HUGS, and more HUGS

I love & Miss you

Marybeth, Sam, Jim, James & Chloe

October 28, 2009 | Unregistered CommenterMarybeth Sheridan

Dear Family,

Welcome back home! It's good to read that Fallyn is getting better and better! I wish her one day to be able to forget what EB was about. Have a nice time at home, dear brave girl, and enjoy your family and friends.

I will be praying for you for a speedy recovery.

October 24, 2009 | Unregistered CommenterElena Eneva

Hi Frank and Fallyn,
I was just reading through the website and I have to say my heart goes out to you guys. Just to see what you have been through and how far you have come.You guys are incredible!!! My thoughts and prayers our with you always..and it sounds like you guys have alot to look forward to.God Bless and email me or call when you get an extra minute. Just wanted you to know we were thinking about you!
Dawn and Mike and Family

October 23, 2009 | Unregistered CommenterDawn Coyne

HI FRIENDS!!!!!!!!!

We miss seeing you and can't wait to see you on October 5th/6th. Paige will be having all of her tests the 6th too. You guys are so the same!!!!! STILL!!!! Glad to hear the scrapbooking contniues-your fantastic journey should be doucumented. We know there will be a day soooon when you can show all your family and friends and say "remember when!"

We hope your new neighbors are nice (of course NO comparison :))

It makes us very happy to hear you are still getting better EVERYDAY! YOU GO GIRL!

See you soon-can't wait to see your sweet smile :)

Mindy and Paige Lindner :);):);)

October 2, 2009 | Unregistered CommenterMindy Lindner

Frank - I read your post on Kyle's guestbook and would love to have more dialog with you concerning Fallyn's experience. I am the Campaign Coordinator for Kyle's fundraising endeavors. Your blog indicates such positive possibilities for these RDEB kids! I, too, had inquired into the program at University of Columbia, basically due to the costs of that trial compared to the costs of this one, and would like to know more. I know that Kyle has complete faith in Dr Wagner and is determined to get the transplant. Fallyn is a brave young girl who has the rest of her life in front of her. How wonderful to know that her life may be one that is not lived in constant pain. Your next week sounds unbelievably busy and crazy. When things settle down, please email me at My best wishes for sunshine-filled days for Fallyn!

October 2, 2009 | Unregistered CommenterSusan Johnson

Hello! I am so glad to hear that things are going so well! I had in my notes to call to schedule a follow appointment but it looks like you have things under control...Please take care and call if there's anything that I can do.

August 27, 2009 | Unregistered CommenterJodi Smith

Dear Fallyn,

I hope you are getting better and will enjoy many happy days from now on!
You are such a brave girl, I respect you very much!
My thoughts and prayers go to you for a very successful transplant and a painfree life, when you can do what you like, unhindered by EB.

August 24, 2009 | Unregistered CommenterElena Eneva

Hey Fallyn, it is about time to come home soon and "get Tom"..... right?? We miss you! You are something else! We continue our prayers for you and your family. See you soon!

August 19, 2009 | Unregistered CommenterBarb and Tom

Hi Fallyn and family,

You don't know me but I was on the motorcycle benefit run that was held in your honor last week. We had a beautiful day to do the run, food was great and so were the people who attended. I am friends, since high school with your cousin Mike and Debbie Morgan in Export. I was very touched by your story and how brave of a little girl you are. I will continue to keep you in my thoughts and prayers and hopefully get to meet you one of these days soon.

Take Care and God Bless,

Melissa Lewis

August 18, 2009 | Unregistered CommenterMelissa & Bill Lewis

Opps we sent that prematurely. We saw your birthday pictures and hope you had a great birthday with lots of presents. Nicky wants to know if you can play a DS game with him, soon. What kind of videos do you like to watch?

Have a great day and write us back.

Your cousins...Nicky, Spencer, Savannah, Gabrielle

PS--Frank....I miss your long hair and scruffy beard....Julie!


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