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Leave a message for Fallyn & her family

Dear Fallyn and Frank,

That's wonderful that you are on your way to the improvement. That's very good that the white blood cells are appearing again, that she still has energy and eats by herself.

Good luck with the itchy monster! May be it means that the skin starts to recover?

Have a calm and wonderful day!
I keep you in my thoughts and wish you the best.

July 2, 2009 | Unregistered CommenterElena Eneva

I don't know if you knew that I lost my hair this year to chemo too. I wore a wig to school for a few months. It is coming in well now. It is curly too. Don't worry about yours.You will look beautiful. Keep strong.
Mrs. Testa (grade 4 WHE)

July 1, 2009 | Unregistered CommenterMrs. Testa

Hey Fallyn,
I was so pleased to hear the news that your bone marrow transplant was completed. I am extremely happy for you and your family. I wish you the best of luck in your recovery over these next few months.
Your Favorite Hand Therapist

June 29, 2009 | Unregistered CommenterJohn

Hi Fallyn,
I am thinking of you all the time and checking your progress on Daddy's blog. I am so proud of you. You are the most amazing little girl that I know. I keep you in my prayers every day.
Miss Becky

June 29, 2009 | Unregistered CommenterMiss Becky

Hi Fallyn - we are always praying for you and hope you are doing well!!!! Wishing you all the best and thinking of you always!!! You are awesome!!!!!!

your friends XO XO
Sami and Cheri Hall

June 29, 2009 | Unregistered CommenterCheri and Sami Hall

I pray for you Fallyn to get better fast. I remember your beautiful smile everyday at preschool.
You are the bravest little girl I know, I hope to see you out and about soon. God Bless YOU and your FAMILY!
Cheryl please keep me posted.

It is wonderful to hear how well things are goingr. I first heard of Fallyn via an on line game i play with her uncle. He has kept me up to date and provided me the link to your blog. I had never heard of this condition before and i've learned an awful lot because of Fallyn.

My prayers are with Fallyn and all of the people important to her. This is an amazing path y'all are walking and i can only believe that good will continue to spread out in ripples, sometimes to touch things and people whom you would never have anticipated. God bless and take care. You remain in my thoughts and prayers.

June 27, 2009 | Unregistered CommenterAula/siddhe

Fallyn, Jen, and family,
I am so glad to hear that things are moving along. I am thinking of all of you often and continue to say prayers for you. So many people are praying for you. You are NOT alone. Think only positive thoughts and stay brave. You are going to be fine. Lots of love, Mrs. Testa

June 26, 2009 | Unregistered CommenterMrs. Testa

Hi Fallyn! what's up?I hope you feel better.Did you know, that your so cute that I can sqeeze you?But of course I won't because of your skin disease. Get better soon!

June 24, 2009 | Unregistered CommenterAngelina

Fallyn and Family:

You will be in my thoughts and prayers. I am a friend of Hannah's (her Texas nurse).
Praying for miracles for you in your family in the days ahead.
Melinda Harris

June 23, 2009 | Unregistered CommenterMelinda Harris


My family and I wish you the best of luck and continued strength through this. You are an amazing girl. My daughter, Rafaella, also has RDEB, and will be undergoing this treatment in New York City very soon.

June 23, 2009 | Unregistered CommenterBrett Kopelan

Hi Fallyn,

Our prayers and thoughts are with you as you go through this new surgery. You are indeed a brave and courageous little girl and an inspiration to many people. We are friends of your grandparents in Florida and they always let us know how you are progressing. God bless you, Fallyn.

Joe and Barbara Torcellini

Hi Fally,

Wow, you have finally made it threw the 1st part of your journey. Aunt Dee asks everyday how you are doing. I am gald to see your progress each day. Your birthdays coming up and I am hoping that you will be able to be home " What " a Birthday party you will have. Tomorrw your sister gives you that wonderful gift her Bone Marrow, she is just as strong and brave as you. Aunt Dee will be thinking of both of you.

I love you honey,
Aunt Dee

June 21, 2009 | Unregistered CommenterAunt Dee

Hi Fallyn--We are keeping you in our prayers. We live in Pompano Beach, FL with your grandma and grandpa McNamara who are there with you now. We think of you every day and hope all is going well for you, your Dad and your sister.
Carmel and Andy

Hi Fallyn,
I have been thinking about you since your last day of school and I miss seeing you. I hope your travel went well to the hospital. I know they are being good to you out there. I hope they have alot of chocolate milk for you. If not they better find a chocolate cow. Because we know the queen of the bus needs her chocolate milk. I hope to see you when school starts in the fall. I will keep you in my thoughts and prayers always.
Your go to school bus driver,
Miss Becky

June 14, 2009 | Unregistered CommenterMiss Becky

He Falley,
I just can't sop thinking of you and how much I want you to get better. I know today is the begining of your treatment. Each time Aunt Dee finds a penny with a face up, I wish onlly for a miraclel for you. As I find these pennys I will save them and keep them till you come home and they will be yours.

I love you with all my heart,
Aunt Dee

June 13, 2009 | Unregistered CommenterAunt Dee

Hi Sweetheart,
I "MISS YOU" and hope everything is going well....I think about you every day!!! You are the "bravest" little princess I know..My children and the people at JCPenney's ask about you often and send their LOVE... I will keep you and your family in my prayers.. Give my best to Jen and your dad..... God Bless..

June 11, 2009 | Unregistered CommenterMrs. Johnson

Hello Fallyn,
You probably don't remember me, but I work with your Dad--I drive bus #50. I just wanted to let you know we are praying for you, your sister, your Dad and Mom, and all your doctors and nurses!! I know you are one of the bravest little girls I know and that God wants to bless you!!!!! Hang in there, your miricle is on it's way!!!!!
Gos Bless You and Keep You....

June 7, 2009 | Unregistered CommenterCarole Bus #50

Hello Fallyn and Family

I Just wanted to say say Hello.
Everything is coming along with the Golf Outing.
I had a hard time picking out what picture of you to put on the shirt. They are All So Cute.!
I am looking Very Foward to meeting you when you return.
Take Care and Our prayers are with you.
Love The Auer Family...

June 3, 2009 | Unregistered CommenterMary Auer

My best wishes to the brave girl to pass the BMT process smoothly and to become healthy to the joy of all the family and friends!

June 3, 2009 | Unregistered CommenterElena Eneva

Hey girlfriend!!! I hope your doing well. I will miss you over the summer. I think about you all the time!!!! I can't wait to hear all about what your doing!!! I'll talk with you soon!!! Love, Miss Joyce

June 2, 2009 | Unregistered CommenterJoyce Feenan

hi fallyn good luck with your surgery and best wishes to you and your family, god bless you all!!!!

May 30, 2009 | Unregistered CommenterJaden Vargo

hi fallyn good luck with your surgery! have a good summer!!!!!!!!!!!!!!!!!!

May 30, 2009 | Unregistered CommenterBraunlyn Sistek

Hi Fally,

Aunt Dee just loves your website. Its so nice to see how many of your friends care and send you Well Wishes. You are so lucky to have such a Big sister to be your Guardian Angel . You can see just how much your sister loves you to give you such an amazing gift.
I love you Fally,

Aunt Dee

May 30, 2009 | Unregistered CommenterAunt Dee

Hey Fallyn,
I love your name! It is as beautiful as you are. I pray that they will find a cure quickly for you and I will keep you in my prayers. Take care and God bless you.

May 30, 2009 | Unregistered CommenterDeedra

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